During Grair’s pre-op appointment this afternoon, Grair had some unexpected visitors. It turns out the Arizona Baseball team—in-between thumping UCLA and potentially competing against UCLA again on Thursday—made a visit to Children’s Hospital! Grair was pretty excited to see an entire baseball team. Cael and Blythe were up as well, and they got to meet the team also (the tweet mentions Andrew, but that’s Grair, Cael and...

Believe it or not, things have been calm since out last post. Grair has done exceptionally well given his new routine of daily IV antibiotics. He’s enjoyed being able to run outside and enjoy the weather (even the hot weather). Last week, Melissa and Grair had an appointment with Dr. Fletcher, Grair’s cardiologist. Nothing major to report, other than it is definitely time for the repair. Dr. Fletcher described Grair’s heart...

During my last post, I mentioned how our intentions were to stay up at Children’s until the surgery on June 20. The concern was Grair’s daily fevers needed monitored, as did his kidney functions and other “metrics” used to track blood counts, infections and other functions. Perhaps it was the act of posting to the blog, or that the doctors found the correct medicinal cocktail, but somehow Grair fought through the ailments...

Since it’s been a while since our last update, we have a lot to cover. On Sunday, May 20, Grair came down with a fever. We had been home for about 5 days, and had strict instructions to call our pediatrician if such an event occurred. After consulting with the cardiologists and infectious disease doctors in Omaha, Dr. David sent us back to Children’s to be admitted. So, back to Omaha we went. For the next week, Grair continued to...

On Saturday night, Grair came down with a fever. After a few minutes the fever disappeared and didn’t return the rest of the evening. However, on Sunday evening the fever came back. After being checked out by Dr. David in Lincoln, Grair and I journeyed back up to Children’s. The infectious disease doctors want to monitor Grair to determine what’s causing the fevers. Given the amount and types of antibiotics Grair is on,...

Last night Grair finally made it home. After 12 days in the hospital, it feels great to be back in our comfortable surroundings! Our stay back at home doesn’t come without some extra baggage, though. We’re stocked full of strong antibiotics that we administer three times a day. Grair has a central line (essentially a more permanent IV) in his arm that connects through a vein into his bloodstream. With thorough cleaning and a...