During my last post, I mentioned how our intentions were to stay up at Children’s until the surgery on June 20. The concern was Grair’s daily fevers needed monitored, as did his kidney functions and other “metrics” used to track blood counts, infections and other functions. Perhaps it was the act of posting to the blog, or that the doctors found the correct medicinal cocktail, but somehow Grair fought through the ailments...

Since it’s been a while since our last update, we have a lot to cover. On Sunday, May 20, Grair came down with a fever. We had been home for about 5 days, and had strict instructions to call our pediatrician if such an event occurred. After consulting with the cardiologists and infectious disease doctors in Omaha, Dr. David sent us back to Children’s to be admitted. So, back to Omaha we went. For the next week, Grair continued to...