From swimming lessons on Thursday to echo’s on Friday afternoon to being admitted at Children’s by Friday evening; it’s been an adventure!

Since November Grair has had ongoing fevers with no real source/explanation. We now have a source and a course of treatment, thank goodness! Grair has developed a blood infection that has required attention immediately to protect his heart from becoming infected. So yesterday, Saturday Grair once again had surgery, this time to have a central IV put in his neck to run lots of heavy antibiotics to clear his body and blood. The antibiotics will run here, and when we leave Seth and I will learn how to administer them at home.

We will remain at Children’s until at least mid week to speak with Cardiologists, Infectious Disease, and a Pediatric Dentist. We may never know how the blood has become infected but we do know that Grair’s teeth could be the source. Since Grair’s birth he’s been on so many medications, that most of the enamel on his teeth is damaged. The damage continues and there are 3 to 4 teeth that have no enamel left and are decaying.  Once we clear the blood we will undergo yet another surgical procedure to cap his teeth and hope to prevent more blood infections.

Today I’m thrilled to announce 2 things 🙂 on Friday we had two echos (how many families can say 2 family members in one day had echos). We echoed the baby and our baby is heart healthy, thank goodness we are thrilled!  Second, if you could see Grair now you would know once again he’ll come out of this ordeal stronger and healthier!  He’s got a long road ahead and many, many IV treatments but with the grace of God he will survive, thrive, and teach us how to cope with tough things. He’s AMAZING.

Please keep Grair in your prayers, I will keep you posted once we have a clearer idea of what’s to come. 🙂