Progress is being made, albeit at a slow pace. Today we got news that Grair’s blood results measuring new growth of strep viridans was negative once again. This is good news, as it now means we can begin to move forward with the next steps. The next steps involve 3 tasks, each of which Grair has to be completely sedated: The cardiologists need to do an transesophageal echocardiogram Dental caps must be put on Grair’s teeth and...

Grair is doing great and feeling good!  He’s getting tired of being in his room and playing iPad (never thought I’d be typing that, HA). We are able to walk the halls and go to the river in the lobby which has been a huge blessing!  Yesterday we were hopeful that today we could “piggy back” three procedures in the O.R. under sedation.  One, a transesophageal Echocardiogram to look at the back of the heart to make...

From swimming lessons on Thursday to echo’s on Friday afternoon to being admitted at Children’s by Friday evening; it’s been an adventure! Since November Grair has had ongoing fevers with no real source/explanation. We now have a source and a course of treatment, thank goodness! Grair has developed a blood infection that has required attention immediately to protect his heart from becoming infected. So yesterday, Saturday Grair...